Trisomy 13 and 18 and Quality of Life: Treading ‘‘Softly’’

By Lawrence J. Fenton

Not too long ago I was privileged to speak at an annual international conference of the Support Organization For Trisomy 18, 13 and Related Disorders (SOFT). I learned much more than I taught. There were over 200 families there. Approximately half of the families were bereaved parents of a child with Trisomy 13 or 18. (Keep reading it…)


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Um pensamento sobre “Trisomy 13 and 18 and Quality of Life: Treading ‘‘Softly’’

  1. Thank you so much for writing and sharing your experience at the SOFT Conference. This article you've written is Exactly what we need in these times of Research when we are being bombarded by the new "Sequenom test" .. with those who will profit on this Blood Money. Sadly if women are not given "ALL their OPTIONS" of carrying to term, they will believe they must prepare to say their good-byes all to soon. http://sandiegobiotechnology.com/topics/2607/sequenom-test-for-down-syndrome-trisomy-18-gives-pregnant-women-wrenching-choices-in-nation-polarized-over-abortion/

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